Ask the VBF Experts

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.



Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.



Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.



Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.



Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.



Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!



Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.



Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.



Brian Bolinger, Esq. Director VBF Advocacy Alliance
This alliance is being formed to coordinate legislative, legal, and insurance related issues regarding the diagnosis and treatment of vascular birthmarks and tumors.



Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.



Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian



Dr. Gary Giangola, KTS Treatment Specialist
If you have questions concerning the surgical treatment of KTS or other vascular lesions of the arms, legs, or trunk, contact Dr Giangola.



Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.



Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.



Dr. Thomas Serena, Wound Care Specialist
Please send Dr. Serena your questions regarding wound care for an ulcerated hemangioma or other vascular birthmark, tumor, or syndrome that requires wound care.



Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.



Dr. Jason Mouzakes, Airway Surgeon
Email Dr. Mouzakes with questions regarding airway hemangiomas and other vascular lesions in the airway (throat area).



Dr. Steven Fishman, Internal Lesions Surgeon

Ask Dr. Fishman your questions about liver and other internal vascular lesions.



Dr. Susie Astner, European Laser Specialist
VBF's Ask the Laser Doctor offers expert advice on laser treatments for all vascular birthmarks by Dr. Susie Astner.



Dr. Denise Metry, PHACE Syndrome Specialist
If you have any questions regarding this syndrome, please ask Dr. Metry.



Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.



Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.



Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.



Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.



Lex Van der Heijden, CMTC Foundation

If you or your child has CMTC, please contact Lex with your questions.



Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.



Elissa-Uretsky Rifkin, Midwest Developmental Specialist
Elissa Uretsky- Rifkin, M.Ed. CMHC
is a trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.



Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.



Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.



Zeina Tannous, M.D., Laser Dermatology Expert
Ask our expert Dr. Tannous, your questions about laser dermatology.



Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.



Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.



What Our Families Are Saying About Us

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina




Find a Doctor - Europe

Note: This list in no way is to be construed as containing the ONLY physicians who treat vascular birthmarks. There are many other physicians who are qualified and have great expertise in this area. This list contains some physicians who have become a part of our resource list. If you are a physician or if you know of a physician who should be added to our resource list, please send his/her name, address, phone number, fax and e-mail (if available) and indicate under which state or country his/her name should appear and send to Info@birthmark.org. Also indicate if the physician is a dermatologist, surgeon, etc. We briefly mention what some of these physicians treat if we have that information under their name and address.

Europe

Alderhey Childrens Hospital Eaton Road
Liverpool

Beginning in January 2009, Dr Waner will be visiting Liverpool on a regular basis to see patients and perform sugeries, working in conjunction with Mr Liew Consultant plastic surgeon.

 

We have a large vascular birtmarks service including a multidisciplinary team and a large vascular service.

 

Patients may contact:

cath.gorst@alderhey.nhs.uk

 


Europe

 


Dr. Ignacio Sanchez-Carpintero, MD PhD
Unversity Clinic of Navarra
Medical School of the University of Navarra, Spain
isanchezc@unav.es

 

Norway
Sweden

 

Associate Professsor Agneta Troilius, MD, PhD
Laser & Vascular Anomaly Section
Dep of Dermatology
Skane University Hospital
205 02 Malmoe
Sweden
+46 40 33 65 18 tel
+46 40 33 12 11 fax

 

Holland

 

Jan Kromhout, MD PhD
Hospitaalweg 1
Flevo Ziekenhuis
Almere
Holland
1315RA
phone: 0031 36 5398701
In our centre the surgeon, the plastic surgeon and
the pediatrician work together in the treatment of vascular malformations.
If LASERtreatment or embolisation is indicated, patients are referred to The
University Hospital in Amsterdam

 


Finland

 

Netherlands

 

Prof C.M.A.M.van der Horst
Plastic surgery Academic Medical Centre
Po box 66220
1100AZ Amsterdam
The Netherlands-, email c.m.vanderhorst@amc.uva.nl, tel 020-566297.

 


Denmark

France

 


Dr. Odile Enjolras
Groupe Hospitalier
Cochin Hospital Lariboisiere
Paris France
Phone: 33 14 9958 359
Email: odile.enjolras@lrb.ap

 

Greece

 

Dr. Stavros Tombris
51 Kifisias Av
11523
Athens, Greece
Facial Surgeon who operates on children and adults with vascular birthmarks and tumors or the head and neck area. Dr. Tombris spent several years studying in Boston, Mass.
stavros@stavrostombris.com

 

Belgium

 

Laurence M. Boon, M.D., Ph.D.
Center for Vascular Anomalies
Division of Plastic surgery
Cliniques universitaires St Luc
Avenue Hippocrate 10
B-1200 BRUSSELS
BELGIUM

 


Dr. Romain Vanwijck
Service De Chirurgie Plastique
Cliniques Unversitaires St. Luc
Brussels, belgium
Phone: 32 2 764 14 03
Email: vanwijck@chiruc.ac.be

 


Germany

 


Sekretariat Prof. Dr.med. H.-Peter Berlien
Elisabeth Klinik
Abt. Lasermedizin
Lützowstr. 24-26
10785 Berlin
Sekretariat: +49 (0) 30 2506-902
Fax: +49 (0) 30 2506-923
E-Mail: lasermed@elisabeth-klinik-berlin.de

 

Dr. Dirk Loose
Center for Circulatory Disturbances and Vascular Defects
Bahrenfelder Steindamm Nr.
109-111, 22761
Juergensallee Hamburg, Germany
Phone: 011-49829610
Email: info@gefaesszentrum.de
0049-40-46- 00 39-0 (phone)
Serving: Europe, China, South Korea, New Zealand, Singapore, Egypt, USA, and Canada.
Sponsors annual gathering for families affected by vascular anomalies.

 

Susanne Astner M.D.
Charité University Medicine Berlin
Department of Dermatology
Charitéplatz 1
Germany
0049-30-450-518039 for appointments


 

Spain

 


Dr. Ignacio Sanchez-Carpintero, MD PhD
Unversity Clinic of Navarra
Medical School of the University of Navarra, Spain
isanchezc@unav.es

 


Italy

 


England

 

Dr. Richard Barlow
Dermatogoligst
St. John's Institute
St. Thomas Hospital
London, England

 


Dr. Karen Healey
St. Thomas Hospital
London, England
Att: Angie, Dr. Healey's Secretary 001144-1232-618-737 (phone) 001144-171-922-8186 (fax)

 

Alderhey Childrens Hospital Eaton Road
Liverpool

Beginning in January 2009, Dr Waner will be visiting Liverpool on a regular basis to see patients and perform sugeries, working in conjunction with Mr Liew Consultant plastic surgeon.

 

We have a large vascular birtmarks service including a multidisciplinary team and a large vascular service.

 

Patients may contact:

 

cath.gorst@alderhey.nhs.uk

 

 

Scotland

 


Ireland

 

Dr Alan Irvine MD FRCPI MRCP
Consultant Paediatric Dermatologist
Our Lady’s Hospital for Sick children
Crumlin
Dublin 12
Ph + 353 1 428 2532
Email: alan.irvine@olhsc.ie
Physician referral to rona.oreilly@olhsc.ie P: + 353 1 428 2532

 

Dr Rosemarie Watson MD FRCPI FACP
Consultant Paediatric Dermatologist
Our Lady’s Hospital for Sick Children
Crumlin
Dublin 12
IRELAND
Phone: + 35352-428 2541
Email: rosemarie.watson@olhsc.ie
Physician referral to yvonne.thompson@olhsc.ie . Ph: + 353 1 428 2541.

 

Interests include haemangiomas and laser therapy. A monthly paediatric multidisciplinary vascular clinic (dermatology, plastic surgery, interventional radiology) is held at the children’s hospital above.

 


A multidisciplinary vascular clinic is also held quarterly at the adult centre, St James’s Hospital, Dublin and represented by vascular surgery, radiology, plastic surgery and dermatology. Access is through referral by family practitioner to Department of Dermatology, St James’s Hospital, Dublin or email: watsonsec@stjames.ie (Catherine Berry-Byrne).

 

 
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